Friday, November 28, 2014

About Us

Hi there and welcome to #hypo/eractivebutterfly

The purpose of this blog is to provide you with a method to deal with your thyroid challenges. If you have found your way here you have either lived with this disease for a while and have grown to despair the frustration that is this disease and/or have just found out recently just what it is that has been going on in your body for X amount of time.

Either way, we welcome you with open Thyroid arms.

There are two writers for this blog  #hypo/er-active butterfly

Both of us will give you our trial and error methods on how to make it through certain symptoms. It's convenient because you can simply read it on a tablet, phone or computer even when you can't get out of bed.

Also, if you have pets who suffer from this insidious disorder, we will post tips that can alleviate their symptoms.

So about us-

I'm calling on my totem- White Tiger
I've been dealing with both sides of the spectrum for about 11 years. I was first diagnosed with hyperactive thyroidism at the age of 14 after feeling bumps on the back of my neck. After a few months of being on Tapizole, I was in remission. "Yay no more medicine!" 


Then after an eye-opening trip in mid-2005 to various European countries, I was told that my thyroid levels were through the roof. For a normal 125 max level, It was double that for hormone levels. In early 2006, my endocrinologist [mis]informed my parents and myself that would have to have my thyroid radioactively ablated. About a month after the procedure, I was not on any medication because of the surplus of thyroid hormone. 

Then crash...

Hair felt dry like a boar's brush and fell out in small clumps. Skin was dry and joints were stiff. Constantly felt fatigued and cold; would nap in microfleece pajamas in class. Teachers were worried because of grades failing, just due to brain fog. Nevertheless, we went back to the endocrinologist and got on a small dose of synthroid. A multitude of blood tests and various doses later, still don't feel fantastic... Sometimes balanced, sometimes not.. 

Felt as though needed to share my story and share the tips on how to conquer this disorder. Music playlists for the day, particular hygiene routines, nutrition and other amenities will be posted to help you in achieving your full potential. 

Im Wolf

I live a thyroid life.

I live my life on half a thyroid gland. That may not sound like a big deal to those not familiar with what the Thyroid gland's function in the body is. But trust me is a VERY big deal.

A few years ago I had half of my thyroid gland surgically removed due to a suspected malignancy.

Surgery was advised as the ultra sound and needle biopsy proved in conclusive.

At the time many of my symptoms were pretty text book Thyroid...with also a huge smattering of
'non' text book symptoms. (ie: digestion issues, allergies, )

As the Thyroid symptoms presented themselves as allergies and digestion problems the mainstream medical approach was let's treat it from a Gastro-Intestinal approach.

13 months later...

I had dropped a staggering 24 kgs in food intollences were sooo huge and acute I couldnt even stomach black tea...any tea...only water. Sometimes black coffee...survived food wise on chicken breast baked in the oven...with tiny drops of Olive seasoning..and steamed brocolli and pumpkin...again no seasonings, flavours nothing. Breakfast was 2 Rice Cakes...some ham and some days Vegemite.

Then there was the total hyper sleep...but full on energy.

Hair was falling was dry...eyes focus mentally...forgetfulness..huge emotional swings...

Yes I was classic Hyper T

Fast forward post surgery...

I hit Hypo T...oh yes now the fun times really began.

Where am I now?

Somewhere in the middle...and no it's not the best or perfect scenario...but I have learnt that to even be in the middle is GREAT. This does not mean I am 'back to normal'...that planet is never to be visited.

This is because there is NO cure for 'this'...there is no magic solution...there is only day by day and some days are better than others...some arent...but I have also learnt that that is also "ok"...

Together with Tiger I have spoken soo much and therefore learnt so much about this disease.

And that's one of the reason I want to write this blog because not everything with such a dis-ease
is 'text book.

It's the onion of diseases, it's insidious and once you realise that...then you are on the path to claiming your life back!